Monday, February 20, 2012

A Diagnosis...

My boys, planning, creating and always doing something!
I have been pretty quiet the last few days and that is due in part to having overnight guests from last Wednesday through Sunday and also from the fact that I have spent what little free time I have had trying to understand and wrap my head around the diagnosis that we finally received last week concerning my sweet, youngest son. 

After his adventure in testing, a 72 hour EEG, abnormal brain wave spikes were found.  This, in conjunction with previous seizures, brings the conclusion that my sweet boy has a seizure disorder.  So...there is an answer, but it is an answer that brings more questions. 

The Neurologist gave me lots of information to digest and told me to talk it over with DH and then we can all decide how to proceed.  The Dr. was very sweet in that he understood that the information he was giving me was going to raise more questions and he assured me he would patiently answer each one.  What a relief because as the week has gone on my list of questions has grown substantially. 

As far as my sweet boy goes, he is feeling good.  He still has some headaches but we are wondering if they are allergy related and not related to the seizures (see...we still have lots and lots of questions.)  His primary Dr. put him on a 24 hour allergy medicine after our visit last week and it does seem to be making DS2 feel better. 

It has been 5 weeks since the last seizure...and we are still wading through this new stream of life.  There are so many questions about the present and future for my little boy.  As a Mom, it scares me a lot. I am concerned for the changes this may bring for DS2.   I am not sure what we are going to do as far as treatment as there are many options; some include medication, others revolve around diet and vitamins but all include a large dose of prayer.  I am praying continually to keep reminding my heart (and head) that God is in control.

20 comments:

Amy Lauren said...

I'm glad that you guys are getting some answers- at least now that you know what it is, the doctors will know how to treat it. I've heard people using diet to treat health ailments recently, especially gluten free diets or those with more whole foods, some do that with medication or without. I'm glad your son seems to be going okay otherwise, though.

Still thinking of you guys and praying that you can make the right decisions with everything.

A.L.

Miss Janice said...

Will keep you and your son in my prayers!

Suburban Princess said...

A friend of mine is going through the same thing...except with herself. Right around the same time as your son, she had a series of seizures. They put her on meds and did a million tests...right now they are trying to figure out if it's her thyroid or something else. So far so good but she can't drive for another 6 weeks or so.

I am keeping my fingers crossed that it was just a one off for your son and everything is fine!

Beth @ UnskinnyBoppy said...

Oh no. I'm so sorry that you're having to deal with the worry of what that diagnosis must bring. Your little guy will be in my prayers.

Michelle said...

I am sorry to hear about this. I hope your questions get resolved.

Mrs. Kindergarten...aka...Madame Spoiled said...

How difficult this must be! Your family is in my thoughts and prayers!

Love and Hugs,
Mrs. Kindergarten

fGs said...

Y'all are continually in my prayers. Having a diagnosis is a huge step though as you now have something to work with.

Ally Garner said...

Oh Michelle. While I'm so sad to hear about your son's diagnosis, I'm thanking God that you all have some answers and Physicians that care so much for your family. I'm joining all of the other Ladies here in praying for DS2's health & future. Love & hugs to you all!

Dixie said...

Blessings on all of you, Sweet Sister, as you walk through this time. Praying for a special measure of God's peace and presence during this time.

Lyndy said...

While I know it is not what you wanted to hear, I am glad for a diagnosis. My daughter in love has been on medication for seizures for about three years now and they do keep them controlled. Of course, you have a growing boy and the trickiness is getting the levels of meds right, if that is the route you choose. Praying for your wisdom and discernment and most of all for your sweet boy.

Amy @ Forever 29 said...

I know this is not the answer anyone wanted but hopefully this will keep y'all moving forward with his treatment. Keeping y'all and everyone helping with his care in my prayers.

Sues said...

Yes, exactly: one answer, but many more questions. *sigh* The saving grace is that since we have God, we don't need to have all the answers to be safe and taken care of! :-) Praying for clarity, wisdom, and peace!!!

Lori said...

Praying here too. Is this a boy thing too? I know three boys with seizures and only one girl.

Leigh Powell Hines (Hines-Sight Blog) said...

My thoughts are with you and your family. Today's modern medicine is wonderful, and I know your son can be helped. Best wishes as you decide how to proceed with care.

Kittie Howard said...

Will keep you and your son in my prayers. I'm so sorry you're going through such a painful period. But hope prevails. A friend's son suffered seizures when a child and grew out of them. He's totally fine today. Prayer helps! Hugs!

Rebecca said...

I know this is scary news for you, as a mom. But at the same time, I'm thankful you have a diagnosis, and that today's medicine has come sooo far in the treatment of seizures. I'm bettin' your little man will be just fine. Keeping you and your boy in my prayers.

Princess Freckles said...

This has got to be terrifying for you! I can't even imagine, but you're right, God is in control. I know it's not easy to remember that when you're worrying about your child. I'm so glad he seems to be feeling a bit better, and I pray that continues. He will be in my prayers everyday. xoxo

Sundresses and Smiles said...

I will most definitely keep you in my thoughts and prayers! Even though you're facing many questions right now, at least you have one guiding answer!

CAS said...

So glad you are getting some answers, even if they are not exactly what you wanted to hear. At least you know what you are dealing with. You, your son and your entire family are in my prayers.
CAS

Ruth said...

I am glad you have an answer for DS2. I am sorry it came with so many new questions and I hope you have the answers to those soon.