Monday, January 02, 2012

2011, Ending in Prayer (Part 3)

For background please read here for Part 1 and Part 2 of this journey.
At the hospital, my little guy was responding well and the pediatrician diagnosed him with having experience fainting and an extended seizure.  It is called extended because it lasted for more than 5 minutes, which is not normal.  He was talking, walking and physically seemed to have no lasting issues.  An EKG was performed and the pediatrician mentioned some irregularities but it needed to be looked at by a cardiologist.  My little man was tired and drifted in and out of sleep, which is apparently normal after a seizure experience.  We were told this could happen again or it might not…there isn’t a sure way to know.  They released us with some emergency meds to administer in case of another extended seizure and told us to follow up with his Doctor at home (an appointment I made from the emergency room!) 
We left GA early on Wednesday (the 28th) for home and on our way home we got a call from the hospital telling us that the cardiologist had looked at his EKG and needed us to follow up with our DR. ASAP.  The hospital called and faxed our Dr. the information and EKG results so they would be waiting for us at our appointment the next day.  When we reported to our Dr. the next morning he had already gone over our results sent from the hospital and felt we needed to see a Pediatric Cardiologist.  He also performed an EKG in his office just for comparison.  We are now awaiting a visit with the Pediatric Cardiologist (their offices have been closed for the holidays until in the morning.)  My sweet, but very active little boy is on a strict No physical/sports activity order until we know more.
He is doing well and just seems a bit tired at times.   Today was the first day back to school and until we have further information we are only going for ½ days.  By picking him up at lunch he will avoid the excitement and temptation of P.E. & recess.  His teachers are also very supportive and are keeping an eye on him to make sure he seems OK and isn’t over exerting himself.  Leaving him at school this morning was one of the hardest things I have had to do.  It left me in a panic on so many levels.  This is worse than when I had newborns, I think.  It is very scary.  But…I know the one who is in control and I trust Him.
It isn’t only us who is carrying this burden, but my oldest son (who turns 15 this week) is struggling to deal with it as well.  He was there even before we were, and felt the fear and feelings of inadequacy in a way that most adults never experience… much less a child.  Our daughter left to go back to college yesterday and I know she has carried a huge weight back with her as well.  We are all feeling the need to nest and draw close to each other and just be together.
I would like to say that I have been all sugar and roses during this ordeal, but I have not.  Both my husband and I are tired, stressed and yes…fearful.  I don’t know how we can’t be. The future is uncertain (feeling more so than usual.)  We don’t know what the next round of doctor’s visits will bring.  For me, I am spending a lot of time in prayer…for it is where I find my energy, my encouragement, the only place I can find peace.
This is a link to a song that is touching me like never before as I walk through each day: My Savior My God” by Arron Shust.  I hope you will click over and listen to it and be blessed (for some reason I am not being able to embed it!)  Just the opening lyrics seem written just for a time as this:
I am not skilled to understand
What God has willed, what God has planned
I only know at his right hand
Stands one who is my savior
Thank you all for your prayers, comments and concerns. 
I continue to covet them as we move forward in trying to discover what is going on with our little man.

17 comments:

Lori said...

I'd like to put a name with my prayers? I didn't see one in the post. So scary, I know everything will turn out alright. I will be thinking about all of you. Lori

Rebecca said...

I keep coming back to your blog to check for updates. Please know that lots of hope and prayers are coming from our home tonight, for your family and sweet little man.

Ruth said...

Please keep us updated. Praying this is a one time deal. My brother had an issue his freshman year and they made him wear a monitor for a couple days and thankfully it turned out to be nothing. I hope the same happens for little man

Julie said...

Your family is in my thoughts and prayers. I hope your son will be alright. God is with you all through this. I pray for peace, strength, courage, faith, and hope. God Bless you and your family.

Michelle a.k.a. Farmchick said...

My niece had some of these same issues and things have worked out fine for her, so I am hopeful that it will be for your son. Praying for your family.

proudpatriot07 said...

I hope the appointment goes well this week. It's a good idea that he's going to school for half days too, it's gotta be hard for a kid to not be able to play at recess/lunch. Plus, after all the appointments and hospital, he probably needs a little break. Keep us updated on his progress, still thinking and praying for you guys a lot!

Amy Lauren

Paula said...

What a rough time you've had. I hope you'll get good news at the appointment. Keep us updated!

Nancy said...

I think of you everyday and say a prayer. Hoping for a good report from your next visit.

Hines-Sight said...

I am thinking and praying for you all. I look forward to hearing more.

Susan D. said...

So sorry - I will keep your son and your family in my prayers. Hugs to you.

Susan Barber said...

My healthy 18 year old son (captain of the cross country team) began having seizures during his senior year of high school and was diagnosed with epilepsy, so I can relate. God is faithful even when we struggle. Trusting our children's lives to the Lord is more difficult than trusting our own lives to the Lord. I will pray for you and your son.

Sues said...

Oh, Michelle. I can't imagined how stressed, frazzled, and heavy your heart is. Praying for God to ease ALL of your minds and make the wating for answers more bearable!!! I LOVE that Aaron Shust song - it was on replay for me when we were sent to MI from ATL 5 years ago. Praise God that He can speak to us through music!!!

SarahCate said...

Michelle....I am keeping your son, you all & his team of doctors in my prayers!

JMW said...

Oh, Lord, what your son and your family have been through. I will keep all of you in my prayers and pray for a good follow-up visit.

Jennifer said...

Praying for your family! With love from Hartsville.

Jennifer said...

Praying for your family! With love from Hartsville.

Brandi Nell said...

Oh my... I am so sorry you had to go through all of this. I can only imagine the fear you must have felt. I am praying for you and for your dear son. Your Faith is one that is admired - and will see you through.